Management

While there is no cure for HFS, symptoms can be managed with:
•    Pain relief: Medications like ibuprofen or stronger painkillers if needed.
•    Physical therapy: Helps maintain movement but may be limited by pain.
•    Nutritional support: Some children require feeding tubes or special diets.
•    Surgery: May be needed for skin lumps or severe joint problems
•    Regular doctor visits to monitor weight, joint movement, and skin changes