Simons Searchlight has begun a registry for patients with SCN1B variants to collect clinical data as well as a Facebook group for family support and collaboration: https://www.simonssearchlight.org/research/what-we-study/scn1b/
SCN1BSCN1BSimons Searchlight has begun a registry for patients with SCN1B variants to collect clinical data as well as a Facebook group for family support and collaboration: https://www.simonssearchlight.org/research/what-we-study/scn1b/